by Sara | Feb 28, 2018 | Ehlers-Danlos Syndrome (EDS), Migraine
Did you know that rare diseases aren’t really rare at all? 1 in 10 Americans has a rare disease! A rare disease or condition is one that is seen in fewer than 200,000 Americans (or 2,000 Europeans). Rare disease is difficult to diagnose, and patients may wait a long...
by Sara | Jan 1, 2018 | Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Self-Care
Oh 2017, I have to say that I am happy to see you go. Still, I’m grateful for the lessons you left me with, and that’s the point, isn’t it? The gratitude is so much more important than whether or not things went as you imagined they would. I think so...
by Sara | Sep 1, 2017 | Chronic Illness, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), MedEd
August is Gastroparesis (GP) Awareness Month, and so I want to allow a friend who live with both Ehlers-Danlos and Gastroparesis to share a little about their lives with GP, and how it affects her individually. First I’ll give a little introduction about the condition...
by Sara | Aug 1, 2017 | Chronic Illness, Chronic Pain, Disability
This week I’m recovering from a recent trip to Oregon. I went out there to visit with family, attend an important event, and spend some time on the coast enjoying the vacation. This trip was unique to any others that I have taken in at least the last five years,...
by Sara | Jun 30, 2017 | Chronic Pain, Ehlers-Danlos Syndrome (EDS), Zebra Hacks
I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in now way influenced by the company. I once heard EDS described as living the...
by Sara | Jun 20, 2017 | Ehlers-Danlos Syndrome (EDS)
While May has ended, the need for EDS Awareness hasn’t. I’m teaming up with these awesome bloggers who also live with Ehlers-Danlos Syndrome (EDS) in order to sponsor a giveaway to promote continued awareness throughout the year! My co-hosts are Hannah...
by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed
10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...
by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)
Day 9 – How do you stay motivated in daily life? For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...
by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel
Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
by Sara | May 7, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Relationships, Self-Care, Zebra Hacks
Day 7 – What are your top 5 coping tips? Be kind to yourself on the bad days. Allow yourself to rest. Recognize that resting is not only not a waste of time, it’s productive because on the worst days, it’s what your body needs in order to recover...
I'm Sara,
bibliophile,
professional napper,
and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
