by Sara | Jun 20, 2017 | Ehlers-Danlos Syndrome (EDS)
While May has ended, the need for EDS Awareness hasn’t. I’m teaming up with these awesome bloggers who also live with Ehlers-Danlos Syndrome (EDS) in order to sponsor a giveaway to promote continued awareness throughout the year! My co-hosts are Hannah...
by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed
10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...
by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)
Day 9 – How do you stay motivated in daily life? For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...
by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel
Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
by Sara | May 7, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Relationships, Self-Care, Zebra Hacks
Day 7 – What are your top 5 coping tips? Be kind to yourself on the bad days. Allow yourself to rest. Recognize that resting is not only not a waste of time, it’s productive because on the worst days, it’s what your body needs in order to recover...
by Sara | May 6, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome, MedEd, Migraine, Self-Care, Undiagnosed
Another member of the Chronic Illness Bloggers’ Network – Kali at This Spoonie Speaks, created a Blog Challenge for EDS Awareness Month after looking for one to participate in and not being able to find one! I have decided to catch up in order to...
by Sara | May 5, 2017 | Ehlers-Danlos Syndrome (EDS), MedEd
This May, in order to spread awareness of EDS, I will be sharing some facts about the condition as layed out in the new diagnostic nosology that was published in March of 2017 in the American Journal of Genetics. The Ehlers-Danlos Syndromes are a collection of genetic...
by Sara | Apr 15, 2017 | Anxiety/Depression, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Migraine, Relationships, Self-Care, Zebra Hacks
Although I live with nearly 20 forms of chronic illness, most of which are related to my Hypermobile Ehlers-Danlos Syndrome (hEDS), I have never felt comfortable when someone says that I “suffer” from any one of them, and I have never used that language...
by Sara | Apr 6, 2017 | Chronic Illness, Chronic Pain, Ehlers-Danlos Syndrome (EDS), MedEd, Migraine
I’ve been a little quiet, and the reason is that I am recovering from my second cervical facet radiofrequency ablation (RFA). The procedure is one that I first had at the Michigan Headache and Neurological Institute (MHNI) after doctors there discovered that I...
by Sara | Mar 19, 2017 | Blogging, Ehlers-Danlos Syndrome (EDS)
One year ago today I started Zebra Writes, which makes today my 1st Blogiversary! It’s both an exciting time for and a time, and a time for reflection. March 17th of last year was the date of my Hypermobile EDS Diagnosis, which means that I’ve had a year...
I'm Sara - bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
