by Sara | Sep 1, 2017 | Chronic Illness, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), MedEd
August is Gastroparesis (GP) Awareness Month, and so I want to allow a friend who live with both Ehlers-Danlos and Gastroparesis to share a little about their lives with GP, and how it affects her individually. First I’ll give a little introduction about the condition...
by Sara | Aug 1, 2017 | Chronic Illness, Chronic Pain, Disability
This week I’m recovering from a recent trip to Oregon. I went out there to visit with family, attend an important event, and spend some time on the coast enjoying the vacation. This trip was unique to any others that I have taken in at least the last five years,...
by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed
10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...
by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)
Day 9 – How do you stay motivated in daily life? For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...
by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel
Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
by Sara | May 7, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Relationships, Self-Care, Zebra Hacks
Day 7 – What are your top 5 coping tips? Be kind to yourself on the bad days. Allow yourself to rest. Recognize that resting is not only not a waste of time, it’s productive because on the worst days, it’s what your body needs in order to recover...
I'm Sara - bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
