by Sara | Jan 1, 2018 | Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Self-Care
Oh 2017, I have to say that I am happy to see you go. Still, I’m grateful for the lessons you left me with, and that’s the point, isn’t it? The gratitude is so much more important than whether or not things went as you imagined they would. I think so...
by Sara | Sep 1, 2017 | Chronic Illness, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), MedEd
August is Gastroparesis (GP) Awareness Month, and so I want to allow a friend who live with both Ehlers-Danlos and Gastroparesis to share a little about their lives with GP, and how it affects her individually. First I’ll give a little introduction about the condition...
by Sara | Aug 1, 2017 | Chronic Illness, Chronic Pain, Disability
This week I’m recovering from a recent trip to Oregon. I went out there to visit with family, attend an important event, and spend some time on the coast enjoying the vacation. This trip was unique to any others that I have taken in at least the last five years,...
by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed
10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...
by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)
Day 9 – How do you stay motivated in daily life? For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...
by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel
Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
I'm Sara,
bibliophile,
professional napper,
and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
