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What Chronic Illness (& Life) Taught Me in 2017

What Chronic Illness (& Life) Taught Me in 2017

by Sara | Jan 1, 2018 | Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Self-Care

Oh 2017, I have to say that I am happy to see you go. Still, I’m grateful for the lessons you left me with, and that’s the point, isn’t it? The gratitude is so much more important than whether or not things went as you imagined they would. I think so...
August is Gastroparesis Awareness Month

August is Gastroparesis Awareness Month

by Sara | Sep 1, 2017 | Chronic Illness, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), MedEd

August is Gastroparesis (GP) Awareness Month, and so I want to allow a friend who live with both Ehlers-Danlos and Gastroparesis to share a little about their lives with GP, and how it affects her individually. First I’ll give a little introduction about the condition...
Traveling Using Disability Assistance

Traveling Using Disability Assistance

by Sara | Aug 1, 2017 | Chronic Illness, Chronic Pain, Disability

This week I’m recovering from a recent trip to Oregon. I went out there to visit with family, attend an important event, and spend some time on the coast enjoying the vacation. This trip was unique to any others that I have taken in at least the last five years,...
#EDSAwarenessMonth Blog Challenge Continued

#EDSAwarenessMonth Blog Challenge Continued

by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed

10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...

#EDSAwarenessMonth Blog Challenge – Day 9 – Motivation

by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)

Day 9 – How do you stay motivated in daily life?  For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...

#EDSAwarenessMonth Blog Challenge Day 8 – My Goals

by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel

Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
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Welcome!

I'm Sara, bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain.

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Categories

  • Anxiety/Depression
  • Blogging
  • Chronic Illness
  • Chronic Pain
  • Disability
  • Dysautonomia
  • Ehlers-Danlos Syndrome (EDS)
  • Mast Cell Activation Syndrome
  • MedEd
  • Migraine
  • Relationships
  • Self-Care
  • Travel
  • Undiagnosed
  • Zebra Hacks

Recent Posts

  • Rare Disease Day 2018
  • What Chronic Illness (& Life) Taught Me in 2017
  • August is Gastroparesis Awareness Month
  • Traveling Using Disability Assistance
  • Reduce Your Pain: Oska Pulse as a Zebra Hack

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Knowledge Is Power

  • The Ehlers-Danlos Society
  • Ehlers-Danlos National Foundation Support Group
  • National Organization for Rare Disorders
  • Dysautonomia International
  • Dysautonomia Information Network (DINET)
  • Mast Cell Aware
  • Migraine.com
  • Migraine Research Foundation
  • The American Headache Society Committee for Headache Education (ACHE)
  • U.S. Pain Foundation
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