by Sara | May 18, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Undiagnosed
10. What do you want people to know the most about your life with EDS? There are so many things that I want people to know – that my level of ability and disability fluctuate from day to day and sometimes hour to hour, that EDS almost never travels alone –...
by Sara | May 9, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS)
Day 9 – How do you stay motivated in daily life? For me, it’s extremely important for my mental health to know that I help others. Having others that rely on me, even pets, makes a world of difference for me. I realize that for others this isn’t...
by Sara | May 8, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Travel
Day 8 – What are your top 5 goals that you want to accomplish despite your chronic illness(es)? This is a hard one. I had to give up my career as a result of my EDS, but I’ve learned in the year since then that there’s more to life than your job...
by Sara | May 7, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Relationships, Self-Care, Zebra Hacks
Day 7 – What are your top 5 coping tips? Be kind to yourself on the bad days. Allow yourself to rest. Recognize that resting is not only not a waste of time, it’s productive because on the worst days, it’s what your body needs in order to recover...
by Sara | May 6, 2017 | Blogging, Chronic Illness, Chronic Pain, Disability, Dysautonomia, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome, MedEd, Migraine, Self-Care, Undiagnosed
Another member of the Chronic Illness Bloggers’ Network – Kali at This Spoonie Speaks, created a Blog Challenge for EDS Awareness Month after looking for one to participate in and not being able to find one! I have decided to catch up in order to...
by Sara | Apr 15, 2017 | Anxiety/Depression, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Migraine, Relationships, Self-Care, Zebra Hacks
Although I live with nearly 20 forms of chronic illness, most of which are related to my Hypermobile Ehlers-Danlos Syndrome (hEDS), I have never felt comfortable when someone says that I “suffer” from any one of them, and I have never used that language...
I'm Sara - bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
