by Sara | Apr 15, 2017 | Anxiety/Depression, Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), Migraine, Relationships, Self-Care, Zebra Hacks
Although I live with nearly 20 forms of chronic illness, most of which are related to my Hypermobile Ehlers-Danlos Syndrome (hEDS), I have never felt comfortable when someone says that I “suffer” from any one of them, and I have never used that language...
by Sara | Apr 6, 2017 | Chronic Illness, Chronic Pain, Ehlers-Danlos Syndrome (EDS), MedEd, Migraine
I’ve been a little quiet, and the reason is that I am recovering from my second cervical facet radiofrequency ablation (RFA). The procedure is one that I first had at the Michigan Headache and Neurological Institute (MHNI) after doctors there discovered that I...
by Sara | Mar 19, 2017 | Blogging, Ehlers-Danlos Syndrome (EDS)
One year ago today I started Zebra Writes, which makes today my 1st Blogiversary! It’s both an exciting time for and a time, and a time for reflection. March 17th of last year was the date of my Hypermobile EDS Diagnosis, which means that I’ve had a year...
by Sara | Mar 12, 2017 | Chronic Illness, Chronic Pain, Ehlers-Danlos Syndrome (EDS), Migraine, Zebra Hacks
Full Disclosure: I have been given access to PatientBank.us as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Early on in...
by Sara | Feb 27, 2017 | Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), MedEd, Migraine, Undiagnosed
Did you know that rare diseases aren’t really rare at all? 1 in 10 Americans has a rare disease! A rare disease or condition is one that is seen in fewer than 200,000 Americans (or 2,000 Europeans). Rare disease is difficult to diagnose, and patients may wait a...
by Sara | Feb 23, 2017 | Chronic Illness, Chronic Pain, MedEd, Migraine
In the last week, I have been reminded what a wicked disease migraine can be. I had finally adjusted to always having some level of pain and aura, when I quite suddenly lost the majority of the feeling on the right side of my body. It’s happened before, but...
by Sara | Feb 10, 2017 | Dysautonomia, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome, MedEd, Undiagnosed
Photo is of a mild MCAS reaction while on an anti-mediator regimen. It shows flushing/rash on the face and chest If you know me personally, you probably know that I have a lot of “allergies” and sensitivities to foods, medications, and environmental...
by Sara | Jan 30, 2017 | Anxiety/Depression, Chronic Illness, Chronic Pain, Disability, Migraine
Lately, I’ve been completely overwhelmed. The unpredictability in the weather is making some of my more troublesome neurological migraine symptoms re-emerge. Rebuilding the blog is harder than I anticipated (surprise!) and I spend a lot of time that I would like...
by Sara | Dec 10, 2016 | Dysautonomia, Ehlers-Danlos Syndrome (EDS), Migraine, Zebra Hacks
I come from a BIG family. One where love crosses the boundaries of religion. As a result, I celebrate both Christmas and Chanukah. When you consider that my birthday is the 24th, December is basically just one big party for us! (A party that’s a little more...
by Sara | Nov 30, 2016 | Ehlers-Danlos Syndrome (EDS), Zebra Hacks
I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. I have shared previously that my...
I'm Sara - bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
