by Sara | Mar 19, 2017 | Blogging, Ehlers-Danlos Syndrome (EDS)
One year ago today I started Zebra Writes, which makes today my 1st Blogiversary! It’s both an exciting time for and a time, and a time for reflection. March 17th of last year was the date of my Hypermobile EDS Diagnosis, which means that I’ve had a year...
by Sara | Mar 12, 2017 | Chronic Illness, Chronic Pain, Ehlers-Danlos Syndrome (EDS), Migraine, Zebra Hacks
Full Disclosure: I have been given access to PatientBank.us as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. Early on in...
by Sara | Feb 27, 2017 | Chronic Illness, Chronic Pain, Disability, Ehlers-Danlos Syndrome (EDS), MedEd, Migraine, Undiagnosed
Did you know that rare diseases aren’t really rare at all? 1 in 10 Americans has a rare disease! A rare disease or condition is one that is seen in fewer than 200,000 Americans (or 2,000 Europeans). Rare disease is difficult to diagnose, and patients may wait a...
by Sara | Feb 23, 2017 | Chronic Illness, Chronic Pain, MedEd, Migraine
In the last week, I have been reminded what a wicked disease migraine can be. I had finally adjusted to always having some level of pain and aura, when I quite suddenly lost the majority of the feeling on the right side of my body. It’s happened before, but...
by Sara | Feb 10, 2017 | Dysautonomia, Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome, MedEd, Undiagnosed
Photo is of a mild MCAS reaction while on an anti-mediator regimen. It shows flushing/rash on the face and chest If you know me personally, you probably know that I have a lot of “allergies” and sensitivities to foods, medications, and environmental...
by Sara | Jan 30, 2017 | Anxiety/Depression, Chronic Illness, Chronic Pain, Disability, Migraine
Lately, I’ve been completely overwhelmed. The unpredictability in the weather is making some of my more troublesome neurological migraine symptoms re-emerge. Rebuilding the blog is harder than I anticipated (surprise!) and I spend a lot of time that I would like...
by Sara | Dec 10, 2016 | Dysautonomia, Ehlers-Danlos Syndrome (EDS), Migraine, Zebra Hacks
I come from a BIG family. One where love crosses the boundaries of religion. As a result, I celebrate both Christmas and Chanukah. When you consider that my birthday is the 24th, December is basically just one big party for us! (A party that’s a little more...
by Sara | Nov 30, 2016 | Ehlers-Danlos Syndrome (EDS), Zebra Hacks
I have been given this product as part of a product review through the Chronic Illness Bloggers network. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company. I have shared previously that my...
by Sara | Nov 24, 2016 | Disability, Self-Care
Today is my favorite holiday, which takes place in my favorite season! It is a time to reflect on all that we have, and all that we hope for. I have so much to give thanks for this year. I am grateful for this space, where I am able to share my experience openly and...
by Sara | Nov 13, 2016 | Disability
My name is Sara, and I have a disability. I recently said this (or something like it) out loud for the first time. It’s an odd shift in identity, to go from studying disability in an academic sense and understanding how to advocate for people with disabilities as a...
I'm Sara - bibliophile, professional napper, and disability advocate extraordinaire (kind of) aspiring to find happiness with chronic illness and pain. 
